Today is Ash Wednesday.
It would be my brother’s 42nd birthday if Heaven hadn’t
needed him more. And most relevant to me
today is that it is DISCHARGE DAY! For
Lent this year, I am giving up room 8114 at The Children’s Hospital at OU Medical
Center! That’s right; the Six Dream
Weavers will soon all be together under ONE roof again! We have been on this adventure for 12 LONG days. We are so thankful for the care we have received
here, and so happy that Finn has recovered fully! This has been QUITE a ride, but one we are
sure happy to be getting off of.
Last I wrote it was Sunday morning, and we seem to have been
in a holding pattern of sorts since then.
We had been told more than once that it was all up to Finn, and we know
better than anyone that he is on his OWN (unpredictable) time table. We had been told on Friday that we would
possibly go home Sunday. Well, here is
is Wednesday, and we are finally on the way! Here’s what the last few days have
looked like:
Sunday, February 10 – Children’s Hospital: They attempted a room air test not long after
Finn woke up. He failed. I cried.
Back on .25L of flow for O2 support.
Britt encouraged me to go back to Stillwater to regroup, so I did. I got to see my parents and my kids – helped shuffle
them from one play date to another. I also
went to work for a few hours and got some work done. It was a break I really needed. I was back by dinner time, and I sure had
missed my boys! I had thought we might
go home Monday, too…
Monday, February 11 – Children’s Hospital: Today, Britt got
up very early and headed back to Stillwater for a day of work. I now the big kids (and my mom) were happy to
see him and have a bit of normalcy. That
morning we were told one more night. His
chest was sounding better and better – just had to get off that oxygen
support! He was down to .03L (next
seeing is off), but he was relying on it.
We were going to have a room air test at 10:00am, but he fell asleep so
it was postponed. But, he needed ADDITIONAL support during the nap, so he would have failed anyway. But, after lunch, they turned it off, and he
did GREAT on room air the rest of the evening until bedtime when they turned it
back up to .03L flow. They also pulled the IV out, so that’s one
less nuisance to worry with. Britt
decided to stay in Stillwater and get a work day in on Tuesday as well, so I
spent a long lonely night in the hospital.
Tuesday, February 12 – Children’s Hospital: SNOW DAY! Finn really enjoyed watching the GIANT snowflakes
fall outside our window! But that’s
about all he enjoyed! After a good night
of sleep with O2 at .03, he was awake early due to dispensing of meds, and was
super fussy while we waited on breakfast (but he was on room air!). After he ate, he fell back asleep. And only got about 30 minutes in due to
rounds. Once things settled down again, about
11, he went back to sleep – and O2 support!
UGH! Woke up at 1:00, mad at the
world. Took FOREVER to get a lunch tray,
then he ate a good lunch before puking all over me. TWICE.
I was tired, frustrated, and weepy.
I called for reinforcements.
Seems that was JUST what Finn needed!
Once Daddy got here, he was in a much better mood, stayed off the O2,
and was FUN to be around! It was a GREAT
afternoon – and an EXCELLENT night! We
were both nervous all night watching his O2 saturation number. We needed it to stay above 90. Every time I woke up it was 92 or
higher! So exciting, but nervous it
might not last.
Wednesday, February 13 – Children’s Hospital. WE DID IT!
No O2 all night – AWESOME saturation numbers! He didn’t just accept the task, he EXCELLED
at it! First Doctor was in about
7:30,said we would probably go home today.
2nd Doctor was in about 7:50 – said we would most likely go
home today. 3rd doctor was in
at 8:10. Said we were GOING HOME! He said everything was almost ready. They would round, and then “push the button”
to get us out of here! Probably around
lunch time. WE MADE IT! YAY Finn for all his hard work!
Wednesday, February 13,- HOME! They finally discharged us to go home at
2:00pm. After a stop for cupcakes, we
headed back to Stillwater. SO happy to be home.
We are weary, we are tired, but we are HOME! So thankful for a successful conclusion.
Thank you SO MUCH for all the prayers! I hope the next Finn update is NOTHING but
GOOD NEWS!
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