Showing posts with label SoonerStart. Show all posts
Showing posts with label SoonerStart. Show all posts

Tuesday, March 11, 2014

Party of Six

How in the world has an entire month gone by without an update from the Dream Weavers?  Oh… Yeah… Six people make for a VERY busy life under one roof!  Let’s see…  Professional development classes for me, dance for Lara, basketball season came to an apex and (an undefeated) close for Jake, various family members went to the dentist, Britt and Betsey started Stillwater March for Babies committee meetings (mark your calendar for Saturday, September 20), Britt started working a night job at the print shop for Eskimo Joe’s Promotional Products Group, we attended an NBA Thunder game as a family, survived snow storms and snow days (which will have to be made up), Emma and Lara went to a middle school dance, various birthday parties and sleepovers for the big kids, signing Emma up for spring volleyball, Alpha Delta Pi meetings and events for me, Finn is two (and all that entails), and yesterday it was 78 degrees outside and tonight baseball practice starts for Jake.  WHEW!  What’d I miss?  LOTS I am sure.  I am so thankful for my fun, busy, crazy family; but it is kind of overwhelming to look back over a month and see all that has happened!

I feel like we are falling into a routine with the new work schedules.  It is still crazy for me to get out the door and be ta work by 7:30, but I am making it every day.  I sure like getting off at 2:00!  Gives me a minute to breathe!  To run errands, be creative and work on Dream Weaver Prints business, and to be there for my kids when they get home from school.  Even if I’m not armed and ready with gourmet snacks and fresh squeezed lemonade, I am THERE!  We do chores, laundry, watch TV, whatever until it’s time to start dinner.  Which is early!  With Britt working nights, he gets home from his day job about 5:15, and needs to leave for his night job at 5:40.  That’s 30 minutes to eat, change, and love on him!  So, we start dinner about 4:00 these days!  Emma and Lara are ESSENTIAL in this process!  They are either helping me prep food, or helping keep Finn out of the kitchen!  We have tried lots of fun recipes and have generally enjoyed working as a family to make sure Daddy has a good dinner before he takes off to work hard for our family.  It may not be what we ever wanted, but we are making the most of it!

As for Finn and what’s up in his unique little preemie world…  We decided a couple of weeks ago that he was not progressing as we wanted him too.  Yes, SoonerStart (early intervention) comes once a month or so to evaluate him, and they think he’s doing “fine,” but there are just so many things we WASN’T doing!  Like, I don’t know… EATING!  We had been told to encourage him, and to introduce new textures, and the list goes on.  Nothing was working.  And he was just too skinny in our opinions.  Add to that, he isolates himself at school and doesn’t participate, won’t talk to his teachers, and has some other peculiar social traits.  We decided it was time to get a professional opinion.  Off to the pediatrician we went!  We left there knowing he has not gained a single ounce in 4 months, but had grown taller, with a prescription for an appetite stimulant, a referral to an endocrinologist, and a referral to an occupational therapist.  And a smile on our faces 3 miles wide knowing we were getting help for our little man who we were tired of watching struggle.

We started the appetite stimulant last Tuesday morning.  He takes it twice a day with food.  So, we give it to him at 7:00am after his “breakfast” Pedia Sure and at 2:30-ish after his “afternoon snack” Pedia Sure.  The drug fact sheet stated that “you might notice an increased appetite after prolonged use.”  If by prolonged use, you mean one dose, then YES!  Yes, it does increase appetite!  He has been eating more food in the past week than he did in the past 6 months combined!  More volume, more variations, better foods (not just Goldfish crackers and pudding), more frequency!  His cute little belly just sticks out all the time now!  We are so happy it is working so well for him!  And the even bigger bonus, it has COMPLETELY changed his attitude and demeanor!  Finn has always been a sweet boy, but he was often grumpy and inconsolable, and hard to get him to participate in anything.  Now, he is happier, more involved and engaged, and sleeping better.  He’s also a bit more ornery, but we’ll take it!  In one short week, he has become a completely different child.  It makes us wonder if he was just hungry all along but didn’t know how to fix it.  Or his blood sugar levels were all over the place due to lack of nutrition…  Poor guy!  We’re just happy to see him doing SO MUCH better!



Today we start another adventure with him.  He has his first evaluation with an Occupational Therapist here in town.  We are hoping to help him learn the skills and confidence to do things more independently.  With Mommy, Daddy, 3 older siblings, and Nana the Wonder Sitter, it’s no wonder he doesn’t want to be self-sufficient!  We hope to just help him learn what he needs to be more in par with his peers.  And of course, a bit selfishly perhaps, we want him to be less clingy and needy.  We know part of that is being 2, but having raised 3 other 2 year olds, and knowing how incredible smart he is (sometime I’ll tell you about his puzzle skills), I know he is capable of so much more!  I just can’t wait to see him thrive! 


The break between updates will not be as long next time.  I hope the Occupational Therapy takes off like the appetite stimulant did, and we see fast results!  We’re still waiting on the referral for the endocrinologist, too.  My prayer is that in 6 months, we will look back on this and know we did the right thing and will be able to see marked improvement in our awesome preemie!  He has always been the kind that needed an extra push!  Always a fighter, our Finicky Finn!


Thursday, April 12, 2012

Half a Year

Dear Finn,

In the hustle and bustle of a family of six, you turned six months old a few days ago.  Last Thursday, to be exact!  Your Daddy was home that day with you, and we were still trying to get your child care situation worked out since I went back to work.  (Not really BACK to work so much as I got a new job, but I am not home with you all the time now – I sure miss it!)  I have a silly tradition of taking my kid’s pictures on the monthly recurrence of the date they were born.  I did it with your older twin sisters, with Jake, and with you.  Those first few pictures are some of the most precious pictures I have ever taken, and I hope as a family we always remember that time and how far we have come as a family.

As for you, you are a fighter!  And still completely unpredictable!  You eat when you want to, sleep when you want to, and never do the same thing twice!  We have a better pattern going than we did for a while, and you only wake up once in the night, eat, and go right back to sleep, but the days are hit or miss!  You have good, fun, smiley days, and long, hard, crying days.  Still have colic most evenings, and still break my heart when I can’t make you feel better.  In the past few days, you have mastered grabbing at things, and my long hair seems to be the number one target.  We have gotten a few toys in your hands as well, but your muscle control isn’t the best yet, and you often end up banging yourself in the head with things!  ;)  Your doctors, SoonerStart child development specialist, and all the books say you need to do tummy time as often as possible.  That’s all fine and dandy, but you are not so much of a fan!  You still don’t lift your head up off the floor, and you don’t use your arms to help hold yourself up.  You do, however, plant your forehead firmly on the floor, and scoot (right, left, right) with your legs to move yourself forward.  While this is good, we really need you to hold your head up, buddy!  You are getting there, though.  When I hold you up over my head looking down at me, you support your head then, so we know it’s coming.  You also like to sit looking forward some.  Your head still wobbles and bobbles, but you can catch it and correct it yourself!  SUCH a strong boy!
This past weekend was Easter weekend.  You made your big public debut all over the place!  Saturday morning we took family pictures on the OSU campus, then Saturday night we went to Enid to Grandpa Jake and Grandma Mary’s church to see Grandpa sing in the Easter pageant.  You were a bit fussy, so you and I spent the first part outside, but we got to see the 2nd half of it!  Then on Sunday you went to LifeChurch for the very first time!  You made some people cry, and our campus pastor said seeing you made his whole weekend!  LOTS of people were excited and thrilled to see you and to finally get to meet you!  Seems like we have come full circle since this was also the anniversary of Uncle Brian’s death.  That’s the event that started this whole roller coaster ride.  Seems fitting somehow…

On Monday, our SoonerStart worker came and played with you, you helped me take Stella to the vet, then we had another GREAT appointment with your pediatrician!  You weighed in at 12 pounds 4 ounces and were 24 inches long.  Good Growing, Little Man!  She also released you from all your tethers!  No more monitor – even at night!  That was the last thing we were waiting on.  Now, I am sad to tell you we still have a surgery coming up to take care of your hernia, but we’ll worry about that when the time comes.  For now, just rejoice with us that you are a FREE BABY!  I love being able to pick you up in the morning and snuggle you and catch your first smiles of the day without tripping over wires or accidentally setting off the alarms!  Such a great way to start the day!  You got 2 shots and one oral vaccine, and you woke up Tuesday morning with a bit of a fever, but one dose of fever reducer and you were good for the rest of the day - even made it to pick up Lara from dance to go to Emma's volleyball practice where we ended up talking March of Dimes with 3 other preemie parents.  Such a trooper!

Tuesday was a day of resting, because on Wednesday, you had ANOTHER big adventure!  Daddy and I both had half a day off work to take you back down to see our friends at Mercy.   
But this time, there was a camera crew there to see you, too!  We had been asked by the Oklahoma Blood Institute people to tell your story on camera to help promote the Mathis Brothers Furniture / KOCO Channel 5 blood drive that is happening this coming weekend.  You did SO GOOD!  You fell asleep while Daddy and I were talking to the camera, but you sure are sweet when you are sleeping, so the camera loved you like that!  We got to visit with a few of our favorite Mercy staff members as well, so it was a GREAT trip!  We got the word later that afternoon that the piece would air on television THAT NIGHT!  It was fun calling, texting and posting to facebook for everyone to tune in or set their DVR’s!  Unfortunately, the DVR at our house didn’t record for some reason!  We got home from t-ball practice for Jake and church/LifeGroup for the rest of us, and it wasn’t there.  We got to see it at Nana's house on Thursday, but it wasn't QUITE the same!

So, this past 6 months has definitely been the most eventful 6 months of MY life, and probably yours, too!  I have learned so much, leaned on others so much, and listened to God so much.  Thank you, Finn Ricker Weaver, for being the instrument to teach me those lessons.  I am so lucky to be your Mommy.  Here are the pictures of you on the 5th of the last 6 months.  You have come so far!  I think we all have.  And we have you to thank for it.  We all love you so much!  Keep getting stronger and stronger and stronger! Love, Mom

Birth - October 5, 2011 - 1 lb 14 oz


1 month - November 5, 2011 - 2 lbs 2 oz




2 months - December 5, 2011 - 4 lbs 6 oz


3 months - January 5, 2012 - 7 lbs



4 months - February 5, 2012 - 9 lbs 6 oz


5 months - March 5, 2012 - 10 lbs 10 oz



6 months - April 5, 2012 - 12 lbs 4 oz




Thursday, March 1, 2012

Time Marches On

This week had been all about Finn! But then again, haven’t they all been for a while now?  Finn has had some sort of appointment or intervention every day this week.  On Monday, his SoonerStart therapist came out to check on him.  The last time she was here was 3 weeks ago (she comes every 2 weeks, but last Monday was a holiday), and Finn was a totally different baby than the one she saw last time!  He was awake and alert, and tolerated tummy time so well!  It was such a joy to show him off for her, and she wrote a wonderful report!  Then, he was supposed to see the pediatrician on Tuesday, but she called late in the morning on Monday to tell us NOT TO COME!  She had already diagnosed 5 cases of RSV Monday morning alone, and she didn’t want my susceptible preemie in her germ infested office. Instead, we had a consultation over the phone, I asked the questions I had, and she told me to turn his oxygen down to a flow of 1/16 of a Liter!  WOOT!  This is a big jump down!  We were at ¼, so we skipped 1/8 altogether!  We will probably turn it down again first of next week, but we are SO CLOSE to being done with it all together!  Then yesterday, the home health nurse came out for her assessment and to administer his Synagis (RSV prevention) shot.  Finn weighed in at 10 pounds 8.5 ounces, and was 21.5 inches long.  Hard to believe he is almost 5 months old, and still the size of a large newborn! LOL!  He took the shot like a champ, and pretty much slept the rest of the day!

Today, Daddy is home with us.  SUCH a welcome break!  It’s so nice to have someone to talk to and to help me get things done!  I even got to get out of the house!  I mean, it was just Wal-Mart for 6 cans of formula and some milk, but STILL!  It felt so freeing!  We are enjoying each other’s company and just chatting and watching TV and playing with Finn while doing laundry and dishes.  Such a great day for us!  After Daddy was feeding Finn, he turned the camera on and caught a Finn sneeze that I want to share:



Tomorrow, we are taking Finn on a little adventure.  It’s a Mommy adventure, too!  I hope it all goes well, and I can’t wait to share it all with you!  But, it will be a bit before I can update!  I am also meeting up with a friend tomorrow night in the City to see Mandisa and her Girls Night Live tour!  Can’t wait for some good fellowship, some GREAT music, and to WORSHIP!